9 hours ago
The time when you were out running errands & your left hip thought popping out would be a good idea.
Yeah, not so much.💜😱🧡🤦🏽♀️💚
This spoonielife leaves a lot to be desired, in ways "healthy" people can not understand.
I miss "healthy" me.
I say this with quotes because I was born with bad lungs, bad ankles & trick knees.
But before fibromyalgia, I was known as "The Energizer Gumby Bunny on crack".
I was into everything.
Dance since age 4, modeling, acting, baseball, basketball, rugby, volleyball, cheerleading, etc, etc
I never had imaginary friends, but I had, (still have), a very vivid, wild & active imagination.
I dreamt of taking that imagination to "Hollywood" & entertaining anyone who wanted to see into my mind.
Now, my dreams have faded.
If that idea was hard before, it feels impossible now.
It's very easy for "healthy" people to say "don't give up" "you can do it", but until you have to live every day with the kind of pain & suffering chronicwarriors do, please keep these kinds of comments to yourself.
A better suggestion "How might I be able to help you attain these goals".
But be warned, do not say this, if you do not mean it.
We have enough agony & disappointment to deal with on the daily.
We don't need people with unrealistic aspersions coming in & making grand gestures that fizzle out simply because they cannot handle what we deal with, or the effort, time, & (let's be real) money it may take to actually help.
I'm not sure about other countries, but the U.S. is still very "disability ignorant & suspicious".
And for those of us who battle invisibleillnesses, it is even more so.🙄
We are constantly being challenged to "prove" we can't do things. Like it's something we can just "prove".
Umwhat part of "invisible" makes no sense?!?
And honestly, our illnesses are only "invisible" to the general public. To us & those closest to us, they are not "invisible"ATALL!
So, "healthy" people, potus flotus & congress, get some real education on illness & invisible illness, & stop expecting us to be like youhealthy, we aren't & we will not be again, if we ever were.
pnw spoonie spooniesisterhood themighty